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Posts Tagged ‘Testicular Cancer Research’

The Majority Never Speaks About Testicular Cancer

Results from a national survey on who is educating you ng men about testicular cancer.

Over 60% of young men say, “None of these people” have spoken to them about testicular cancer.

 

Testicular cancer is the leading cause of cancer in young men age 15-35, yet not many people appear to be educating these young men about the disease.

 

A January 2016 survey by the Testicular Cancer Society asked 1000 young men in the U.S., ages 18-34, “Which of the following people have spoken to you about testicular cancer?” Respondents were given 5 multiple-choices in a multiple-answer format.

62% of respondents answered None of the Above

22% of respondents answered My Doctor

10% of respondents answered My Parent

9% of respondents answered My High School Teacher/Nurse

5% of respondents answered My Sports Coach

5% of respondents answered My College Professor/Nurse

 

These results indicate that people most likely closest to these young men are not discussing testicular cancer with them during a time when these young men are at greatest risk for the disease. While testicular cancer can occur at any age, it is disturbing that opportunities to educate those at highest risk are being missed.

Majority (62%) of young men say that No One is speaking to them about #TesticularCancer. #tscsm Click To Tweet

These results showed minor improvement from the 2015 National Spoken About TC Survey in which 67% responded None of the Above compared to 62% in the 2016 survey. 

 

For more information about this survey please contact the Testicular Cancer Society.

Only 1 in 5 young men have heard about #TesticularCancer from their Doctor. #tscsm Click To Tweet

Only 10% of young men have heard about #TesticularCancer from their parents. #tscsm Click To Tweet

Only 1 in 10 young men have heard about #TesticularCancer from their High School. #tscsm Click To Tweet

 

Young Men Are Clueless About Testicular Self-Exams

Survey results on if young men know how to do testicular self exams 2016

 

Testicular cancer is the leading cause of cancer in guys age 15-35, yet a January 2016 survey by the Testicular Cancer Society indicates less than half of young men know how to do a testicular self-exam.

 

The Testicular Cancer Society asked 500 young men in the U.S., age 18-34, “Do you know how to do a self-testicular exam?”

42% of the respondents indicated Yes.

43% of respondents indicated No.

16% of respondents indicated I’m Not Sure.

If caught and treated early testicular cancer is almost 100% curable. However, if diagnosed in later stages the survival rates drop and the treatment burdens are increased. A monthly testicular self-exam can help men become more familiar with their bodies, lead to early detection of testicular cancer and possibly save their life because they’ve noticed changes.

 

The men surveyed were ages 18-34 which is troubling because they are in the age group at highest risk for the disease. 

Majority of young men do not know how to do Testicular Self-Exams. #TesticularCancer #tscsm Click To Tweet

There is a positive sign in that the 42% of respondents indicated that they did know how to do a testicular self-exam, which is an increase compared to the 32% that indicated the same in the 2015 testicular self-exam survey.

 

Resources from the Testicular Cancer Society are available for helping with self testicular exams and for reminders.

 

Their free Ball Checker app is available on iTunes and Google Play. You can learn more about the app at www.BallChecker.com 

 

They also have a monthly text reminder system with instructions that is available by texting @selfexam to 81810

 

There is also information about testicular self-exams on their website.

 

For more information on this survey, please contact the Testicular Cancer Society.

Enhancing Cancer Supportive Care Survey

Enhancing Cancer supportive Care survey

 

A group of researchers at CeRGAS, the Centre for Research on Health and Social Care Management of Bocconi University, Milan, Italy, invite you to participate in the project we have developed together with Helsinn Group: “Mhealth for improving quality of life: enhancing cancer supportive care”.

 

We would ask you for your cooperation to complete our short survey, which you can find at the following link:
https://unibocconi.qualtrics.com/SE/?SID=SV_bqDTTTSSSCQH46V

 

 

Couples Needed for Cancer Research Study

Participants needed for a study concerning the emotional aspects of cancer care

What implications do your partners’ psychological traits and self-conscious emotional factors have on your emotional responses?

 

In the Department of Psychology at the University of Sheffield, we are conducting research into how partners’ psychological traits and self-conscious emotional factors might impact on how people with cancer feel about themselves.

 

The study needs you and your spouse/partner to participate as a pair, but for the study to be valid and produce meaningful results you must complete the survey separately. The study involves filling out a series of short questionnaires and will take approximately 15 minutes. All responses are anonymous and will be treated confidentially.

 

As part of the research we would like to carry out follow-up administrations of the same set of questionnaires at 2 and 4 weeks following the initial survey. The aim of these follow-ups is to assess and get deeper understanding of people’s responses over time. Further information about the survey will be provided before you and your partner decide whether or not to participate.

 

A full debrief will be available following participation and we will give participants feedback on the results at the end of the study.

 

£1 will be donated to Worldwide Cancer Research for every dyad that takes part.

 

If you are interested in taking part in the research, please use the following link to access the study pages, find out more information and to take part by following the link to the survey below:

https://sheffieldpsychology.eu.qualtrics.com/SE/?SID=SV_2bNIc4T8xg8Qu2N

The study is password-protected and you will need the following password to log in: sheffpsy

 

Thanks, your participation is very much appreciated.

 

Regards,

Haffiezhah An-Nadiah Azlan

Cancer is Just Not Scary Enough

In 2010 we wrote a blog post titled Cancer Research or Halloween and since then not much has changed.

To get our fright on, it is estimated that Americans will spend between $6.9 billion and $8 billion on Halloween festivities this year. U.S. News and World Report reports that the average participant will spend $80 which is up from the $72 spent on Halloween for 2012.

 

To put these large numbers into perspective the National Institutes of Health (NIH) is expected to only spend $5.6 billion on cancer research in 2013 via the National Cancer Institute (NCI).

 

Does that mean that cancer isn’t scary enough so we have to supplement the frights with Halloween spending?

 

We think it shows the financial power of the public.

 

The federal government uses our tax dollars to fund the NIH and NCI but the best that they can come up with is $5.6 billion dollars. Note that this is in spite of the Obama-Biden Plan to Combat Cancer in which they promised in September of 2008 to double the funding for cancer research within 5 years. We have yet to find any proof that the budget has doubled.

 

If all the Americans that participated in Halloween were to give the average of $80 a year to fund cancer research then we would be able to double the funding provided by the NIH. Our point being is that to many people $80 a year or $6.67 a month isn’t an enormous amount of money. In fact, most people would feel that even if they gave $10 a month to cancer research or to a charity that helps reduce the burden of cancer that it wouldn’t amount to much.

 

In fact, that is not the case. Giving $10 a month and encouraging your ghoulish friends to do the same can add up and make a huge different. Every little bit helps but don’t skip out on the Halloween candy to make a donation towards cancer because we don’t want the American Dental Association to get angry at us for reducing the rate of caries.

 

Boo!!

 

 

 

CureLauncher and Clinical Trials for Testicular Cancer

Clinical trials are the tools that are used to improve our ability to treat cancer.

Many people think of clinical trials as an all or nothing principle that dates back to the early days of placebo-controlled clinical trials. Before there were effective treatments for a disease they would conduct trials where patients were given a drug or a sugar pill to see if the drug performed.

 

In today’s age, it is no longer ethical to use placebo controlled trials, especially when we have proven treatments, so there really are no longer any of these sugar pills. Clinical trials are often used to compare new treatments to the best that are currently available. By comparing these promising new treatments we can help improve our current “gold standards.”

Cure Launcher Logo

 

In order to find a clinical trial we used to have to rely on the knowledge of our treating physician. Then the National Institute of Health designed a clinical trial registry but this registry was designed more for the clinical trials to have a place for public posting and not really a place for patients to find trials to meet their needs.

 

Now we have CureLauncher, which was co-founded by two-time testicular cancer survivor David Fuehrer. CureLauncher has “translated” the clinical trials into an easier to understand format. They also use Relationship Managers to ensure that they are there for your first and that they are focusing on finding clinical trials that match your unique needs and goals. Instead of having to rely on which trial is at the large local hospital we now have access to CureLauncher and their list of All clinical trials.


[Note: You may not see Testicular Cancer in the condition selector on their home page but they DO have testicular cancer trials available so simply give them a call at (800) 488-6632]

 

Thanks for taking a closer look at clinical trials.

Stay Strong,

Mike Craycraft

One Ball Golf Outing for Testicular Cancer Research

One Ball Golf Outing

Testicular Cancer Survivors Needed for Research

The Need for Research with Adolescent and Young Adult (AYA) Testicular Cancer Survivors

As survivors we have the opportunity to help pave the road for future young men that are diagnosed. That is why we are very excited that Dr. Melissa Carpentier from the Center for Health Promotion and Prevention Research at the University of Texas Health Science Center (UTHSC) in Houston, TX could share with us about her current study with testicular cancer survivors. The following is what she had to say…

 

Testicular cancer is the most common type of cancer in AYA men.  Because so much happens in the AYA years…moving out on your own, college/vocational school, work, dating, marriage, children, a diagnosis of testicular cancer at this time can really throw you for a loop.  Unfortunately, there is very little research out there on the impact of testicular cancer during the AYA years.  That’s where we come in…with your help, we hope to fill this gap in research and help others diagnosed with testicular cancer in the future.

 

The focus of our 5-year, National Cancer Institute funded study is on examining the impact of testicular cancer on romantic relationships and quality of life in the AYA years.  There are 3 phases to our study: individual interviews and focus groups, web-based survey, and web-based intervention program.  Currently, we are recruiting individuals to wrap up our first phase of interviews and focus groups.  Survivors 18 to 39 years, who have completed treatment for testicular cancer within the past 5 years, and who are located in the United States are eligible to participate.

 

If you are interested in learning more about our study or participating, please contact us toll free, (855) 700-5939, or via email, ayatc.research@uth.tmc.edu.  You can also find information about our study on our Facebook page: www.facebook.com/AYATCResearch and, in particular, on our FAQs: https://www.facebook.com/AYATCResearch#!/notes/aya-testicular-cancer-research/frequently-asked-questions/236054709850386.

 

Thanks in advance for considering this research opportunity and please share with any and all testicular cancer survivors you may know.  The more perspectives we have, the better we can identify and meet the needs of AYA testicular cancer survivors!

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