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Archive for the ‘Cancer Research’ Category

Advanced or Metastatic Cancer Patients Needed

Flyer for My Grateful Self Research Study


MyGratefulSelf is an online program designed to enhance well-being and promote positive emotion in young adults with advanced or metastatic cancer.


We are currently seeking volunteers between the ages of 20-39 to help test the program. 


The study is entirely online and can be done from anywhere – no travel is required!  For more information, head over to the study website:  There, you can learn about the study in detail and fill out the interest form. 


You can also contact the research team directly at


Caregivers Needed for Cancer Communication Research Study

Cancer caregivers needed for communication study


My name is Alexis Johnson and I am a doctoral student in the Department of Communication Studies at the University of Nebraska-Lincoln. My research centers on health communication processes, and I am conducting research that I hope will improve our understanding of supportive communication between social networks and family caregivers of patients with cancer. As someone who has provided care to a patient with cancer, I am interested in conducting research that is aimed at better understanding the memorable, supportive messages that are shared with family caregivers in cancer. You may access the survey at the following links:



To participate: Participants in the states of Nebraska and Alabama must be at least 19 years old or older to participate, participants in the state of Mississippi must be at least 21 years old to participate, and participants in all other states must be at least 18 years old to participate. If you meet these requirements, and are a current or former family caregiver of a patient with cancer, and have 20-30 minutes to complete an online survey, you are eligible to participate in this important research.




Alexis Johnson, M.A.


Primary Investigator                                                 Secondary Investigator

Alexis Johnson, M.A.                                                 Jody Koenig Kellas, Ph.D.

Dept. of Communication Studies                           Dept. of Communication Studies

University of Nebraska-Lincoln                              University of Nebraska-Lincoln

Phone: (708) 772-2626                                             Phone: (402) 472-2079

Email:                              Email:


Thank you so much for your consideration. My goal is to help people cope more effectively. I’ve dedicated my life to helping others who are going through or have had to go through this experience.

Enhancing Cancer Supportive Care Survey

Enhancing Cancer supportive Care survey


A group of researchers at CeRGAS, the Centre for Research on Health and Social Care Management of Bocconi University, Milan, Italy, invite you to participate in the project we have developed together with Helsinn Group: “Mhealth for improving quality of life: enhancing cancer supportive care”.


We would ask you for your cooperation to complete our short survey, which you can find at the following link:



Impact of Cancer in Young Adulthood Study

Were you diagnosed with cancer as an adolescent or young adult, between the ages of 13 and 39? Are you now over the age of 18?

Liane Kandler (Doctoral Student, Lakehead University, Canada) created an online survey to try and understand the impact of cancer and would like your input.


Email AYA Research Study for more information on how to complete the survey or visit the AYA Survey Research Facebook page Participants will be entered into a random prize draw for one of three prizes: a personalized iPod nano in the colour of choice, a Kindle e-reader, or a $100 VISA gift card!”


A recent blog post on the AYA Research Survey can also be found at the Cancer Knowledge Network.


Young Adult Cancer Survey Poster

Couples Needed for Cancer Research Study

Participants needed for a study concerning the emotional aspects of cancer care

What implications do your partners’ psychological traits and self-conscious emotional factors have on your emotional responses?


In the Department of Psychology at the University of Sheffield, we are conducting research into how partners’ psychological traits and self-conscious emotional factors might impact on how people with cancer feel about themselves.


The study needs you and your spouse/partner to participate as a pair, but for the study to be valid and produce meaningful results you must complete the survey separately. The study involves filling out a series of short questionnaires and will take approximately 15 minutes. All responses are anonymous and will be treated confidentially.


As part of the research we would like to carry out follow-up administrations of the same set of questionnaires at 2 and 4 weeks following the initial survey. The aim of these follow-ups is to assess and get deeper understanding of people’s responses over time. Further information about the survey will be provided before you and your partner decide whether or not to participate.


A full debrief will be available following participation and we will give participants feedback on the results at the end of the study.


£1 will be donated to Worldwide Cancer Research for every dyad that takes part.


If you are interested in taking part in the research, please use the following link to access the study pages, find out more information and to take part by following the link to the survey below:

The study is password-protected and you will need the following password to log in: sheffpsy


Thanks, your participation is very much appreciated.



Haffiezhah An-Nadiah Azlan

Research: How Are Testicular Cancer Support Groups?

We just received notice of a research project that is looking for participants to evaluate testicular cancer online support groups. We wanted to pass it along and encourage you to participate if you use online support groups.



I am currently undertaking a research project as part of my Health Psychology MSc at The University of Nottingham. The overall purpose of the project is to investigate whether members of testicular and prostate cancer online support groups perceive there to be health and social benefits of membership and if so, what are those benefits.


This study is conducted all online and involves answering a short questionnaire. The questionnaire should take no longer than 5-10 minutes. Participation in this research is completely voluntary and anonymous; you can also withdraw your data at any time. If you have any questions regarding this research please feel free to contact me on


The survey can be accessed at:


Many Thanks,

Tracy Notman

Cancer is Just Not Scary Enough

In 2010 we wrote a blog post titled Cancer Research or Halloween and since then not much has changed.

To get our fright on, it is estimated that Americans will spend between $6.9 billion and $8 billion on Halloween festivities this year. U.S. News and World Report reports that the average participant will spend $80 which is up from the $72 spent on Halloween for 2012.


To put these large numbers into perspective the National Institutes of Health (NIH) is expected to only spend $5.6 billion on cancer research in 2013 via the National Cancer Institute (NCI).


Does that mean that cancer isn’t scary enough so we have to supplement the frights with Halloween spending?


We think it shows the financial power of the public.


The federal government uses our tax dollars to fund the NIH and NCI but the best that they can come up with is $5.6 billion dollars. Note that this is in spite of the Obama-Biden Plan to Combat Cancer in which they promised in September of 2008 to double the funding for cancer research within 5 years. We have yet to find any proof that the budget has doubled.


If all the Americans that participated in Halloween were to give the average of $80 a year to fund cancer research then we would be able to double the funding provided by the NIH. Our point being is that to many people $80 a year or $6.67 a month isn’t an enormous amount of money. In fact, most people would feel that even if they gave $10 a month to cancer research or to a charity that helps reduce the burden of cancer that it wouldn’t amount to much.


In fact, that is not the case. Giving $10 a month and encouraging your ghoulish friends to do the same can add up and make a huge different. Every little bit helps but don’t skip out on the Halloween candy to make a donation towards cancer because we don’t want the American Dental Association to get angry at us for reducing the rate of caries.






Testicular Cancer Survivors Needed for Research

The Need for Research with Adolescent and Young Adult (AYA) Testicular Cancer Survivors

As survivors we have the opportunity to help pave the road for future young men that are diagnosed. That is why we are very excited that Dr. Melissa Carpentier from the Center for Health Promotion and Prevention Research at the University of Texas Health Science Center (UTHSC) in Houston, TX could share with us about her current study with testicular cancer survivors. The following is what she had to say…


Testicular cancer is the most common type of cancer in AYA men.  Because so much happens in the AYA years…moving out on your own, college/vocational school, work, dating, marriage, children, a diagnosis of testicular cancer at this time can really throw you for a loop.  Unfortunately, there is very little research out there on the impact of testicular cancer during the AYA years.  That’s where we come in…with your help, we hope to fill this gap in research and help others diagnosed with testicular cancer in the future.


The focus of our 5-year, National Cancer Institute funded study is on examining the impact of testicular cancer on romantic relationships and quality of life in the AYA years.  There are 3 phases to our study: individual interviews and focus groups, web-based survey, and web-based intervention program.  Currently, we are recruiting individuals to wrap up our first phase of interviews and focus groups.  Survivors 18 to 39 years, who have completed treatment for testicular cancer within the past 5 years, and who are located in the United States are eligible to participate.


If you are interested in learning more about our study or participating, please contact us toll free, (855) 700-5939, or via email,  You can also find information about our study on our Facebook page: and, in particular, on our FAQs:!/notes/aya-testicular-cancer-research/frequently-asked-questions/236054709850386.


Thanks in advance for considering this research opportunity and please share with any and all testicular cancer survivors you may know.  The more perspectives we have, the better we can identify and meet the needs of AYA testicular cancer survivors!

Cancer Research or Halloween

The budget for the National Cancer Institute (NCI) is downright scary.

The Federal Government  fiscal year started on October 1st and the announced budget for the National Cancer Institute should scare anyone. For 2011, the NCI budget is $5,264,643,000 or $5.2 billion to make it simple. This is a 3.2% increase ($163 million) to the 2010 budget.

Let’s Put the NCI budget into perspective.

A budget of $5.2 billion appears very robust but how does it relate to say Halloween? According to the National Retail Federation (NRF), the amount of money spent by U.S. consumers for Halloween this year is expected to reach $5.8 billion. Can this be correct? Yes, unfortunately, it is. U.S. consumers will spend more on candy, costumes and decorations for Halloween than is spent all year on cancer research by the National Cancer Institute.

The average Halloween participant was expected to spend $66.28 because…

In recent years, Halloween has provided a welcome break from reality, allowing many Americans a chance to escape from the stress the economy has put on their family and incomes,” said NRF President and CEO Matthew Shay. “This year, people are expected to embrace Halloween with even more enthusiasm, and will have an entire weekend to celebrate since the holiday falls on a Sunday.

What we need is a break from the cancer reality

However, this break is unlikely to occur anytime soon if the NCI is spending $5.2 billion on 310 million American or less than $17 per American on cancer research. Hopefully, the NCI budget will be increased. In 2008, the The Obama-Biden Plan to Combat Cancer stated that

The Obama-Biden plan will double federal funding for cancer research within 5 years, focusing on NIH and NCI.

Lets hope that the increased funding of the NCI comes soon. However, from 2009 to 2010 the budget increased only 2.7% and from 2010 to 2011 the increase was only 3.2%. Thus, unless something is in the works the doubling of the budget is unlikely to become a reality in 5 years. There was an additional $1.2 billion added in 2009-2010 from the American Recovery and Reinvestment Act but that is still far from doubling.

Perhaps the answer to cancer research funding relies with Americans and not America. Perhaps we need to spend a little less every Halloween and donate this money to cancer research. If we spent just half the amount on Halloween and donated it to cancer research our goal of doubling the NCI budget would be halfway accomplished and take no political intervention at all.

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