Did the post title confuse you?

Well, we have posted about them before but now they are together on Ian’s Episode: Together We Will Win on The Ordinary Guy Network.

 

Take the time to listen to Karen McWhirt, author of  Together We Will Win and Jon Lewchenko, founder of Down With The Cause are together as they talk about testicular cancer. It was a great interview that hits home as to why testicular cancer awareness is so important. Listen today and then tell the young men in your life about testicular cancer tonight.

 

Also, be sure to check out Karen’s book, Together We Will Win and Jon’s organization Down With The Cause.

 

To learn more about Karen and Jon check out our previous posts: What happens When We Don’t Talk About Testicular Cancer and Are You Down With The Cause.

 

Remember, talk to the young men in your life about testicular cancer.

 

 

 

First Descents has opened their 2012 programs. Apply for adventure.

Not familiar with First Descents? Well, you should be.

First Descents offers young adult cancer fighters and survivors (ages 18 to 39) a free week-long outdoor adventure experience designed to enable them to climb, paddle and surf beyond their diagnosis, defy their cancer, reclaim their lives and connect with others doing the same.

Their outdoor adventure challenges are designed to push your limits and make you face you fears. In return you will regain the confidence and self-efficacy that cancer often takes away.

Don’t feel intimidated. First Descents realizes that we are all individuals and the adventures will be tailored to your experiences/abilities and they are there to help make sure you reach your week’s goals.

Want to learn more? Check out the First Descents website and watch the video below.

 

 

OK, you have seen the adventure, now go get it.

Have Fun,

 

 

 

 

“Looking Back on Testicular Cancer”

In the Spring of 2001 I was a healthy 44 year old racing to keep up with a 2 1/2 year old adopted daughter. When my right testicle became swollen — it happened very fast, in just a few days — I decided that my daughter Chloe must have kicked me in the groin when I was trying to strap her into her carseat.

 

When my testicle remained swollen after 2 weeks I went to see my doctor who immediately referred me for an ultrasound exam. I could tell by the serious attitude of the ultrasound technician that something was wrong. In a matter of days I was scheduled for an orchiectomy — surgery to remove a testicle — which was performed by a no-nonsense urologist named Dr. Purohit.

 

Just before I was wheeled into surgery, I was visited by an old friend who had a twisted sense of humor. I looked up from the gurney and said to him “Thanks so much for being here on the day that my right ball is being cut off.” His reply was “I wouldn’t have missed it for anything.”

 

After surgery, I received a pathology report that told that my testicular tumor of pure seminoma had been removed, and that I had “possible vascular invasion.” In other words, there was a chance that cancer might have made its way through my bloodstream to other areas of my body. Because I am an eternal optimist, I went to my radiation consultation and told the radiologist that I wanted to pursue a path of “Surveillance” and skip radiation treatments. My hope was that cancer cells hadn’t invaded my system.

 

Choosing surveillance had 2 consequences later down the road. The first was that a cancerous tumor did indeed develop in a groinal lymph node. The second was that when I applied for life insurance some years later I had a black mark on my record. “Patient refused treatment,” is what the doctor had written. I was surprised by that, as surveillance is often a reasonable option after surgery, even though it didn’t work out in my case.

 

My back began to hurt in the Fall, I avoided seeing the doctor until December, hoping that a sore back was just a sore back. When I did visit the doctor, who really should have been asking me to come in every few months for surveillance exams, he ordered an immediate CT scan. The day after Christmas he called me on my cellphone and told me “You need chemotherapy.” When the call came my wife and I were on the road heading to see relatives in Seattle, but we made a quick return to Southern California.

 

I was very lucky to have a large bank of sick days available to me at the community college where I teach. When I called my Dean to tell him that I would miss a semester, he was very supportive. I was touched when the President of the college called me at home and told me “Please let me know if there is anything I can do for you.” I also had a good health plan that covered my treatment, and did not suffer financially. As I have learned what so many go through in financial terms when fighting cancer, I realize how tremendously fortunate I was in that respect.

 

Chemotherapy wasn’t as bad as I might have expected — at first — and I was given some help with nausea control. Still, as the cycles progressed I looked older and felt weaker. Unlike many patients who lose weight and appetite, I decided to go for “comfort eating” and actually put on weight. I had good days and bad days, and coped with the boredom and lack of energy by listening to a lot of music and reading every magazine in sight.

 

After the second cycle of chemotherapy, there were some very dramatic developments. The most shocking was that my wife of 9 years asked for a divorce. She had decided she needed to return to school and complete her degree, and having a very sick husband was not something she handled well. Here is my perspective looking back: cancer is an earthquake and if anything in your life is shaky, cancer will break it loose. It certainly shook loose a weak marriage.

 

To those of you who have supportive wives, girlfriends or partners helping you deal with cancer, tell them from me that they are extraordinary.

 

A few days after my wife left there were 2 more dramatic developments. My doctors told me that I had “remission” and that my cancer was responding beautifully to chemo and was almost entirely gone. On that same day my brother in law Gary was informed of the death of his sister who had been fighting a brain tumor. One of the things that I as a cancer survivor will always be haunted by is the randomness of mortality. Why was I going to live, when another had to die?

 

During my last 2 cycles of chemo friends and family really came through for me, and I marked off the days on my calendar. Sometimes I felt OK, other times I felt horrible. One day I decided to walk to Carl’s Jr, about 2 blocks from my house, for a milk shake. The walk there went OK, but I sat in the restaurant for 2 hours before attempting to walk home. I had completely exhausted myself just going there.

 

By my last treatment I was anemic, but cancer free. To celebrate the end of my last cycle my parents took me to Mimi’s Cafe for a nice dinner. I enjoyed the meal, and then raced to the restroom to have one more bout of chemo vomiting. It was so awful that it was actually funny.

 

 

Within 6 months after finishing chemo, I met Linda, a news editor, and we began to date seriously. Before we married I told her not to expect to have children with me as I was pretty sure that chemo had ruined my fertility. That turned out to be quite wrong. She became pregnant very easily, and we now have 2 wonderful daughters together.

 

It has been nearly 10 years since my cancer first appeared, and I can honestly tell people who ask that cancer had many positive aspects. “Even the bad days are good days” is a saying I use often, thinking back about the difficulty of chemo, and the fear of illness. I have more empathy for people who are dealing with illness, and am probably a bit more “real” as a person in general.

 

The message I want to give to those dealing with testicular cancer is this: deal with it, prepare to get through it, and plan on enjoying life tremendously when it is over. You can do it.

 

The Seed Family, Thanksgiving 2011

This Year Give the Gifts that Keep on Giving.

Good deals for a good cause just got a lot easier. The Testicular Cancer Society has now partnered with GoodSearch.com which means that every time you shop online a portion of your sale can be donated to support our cause. They will also make a donation for every time you do a web search (about a penny a search) via their Yahoo based search engine.

 

Simply, go to GoodSearch and enter the Testicular Cancer Society as your cause and click “Get started.” You can chose to continue without registering or you can register to track how much you have raised for the cause.

 

With GoodSearch you can shop at over 2500 stores and they will give to our cause. They also offer coupons so that you can save and they will still give to our cause. There is even an option for GoodDinning, where yep, you eat and they give to our cause.

 

Why not shop, search and dine like you normally would but do it through GoodSearch.com and do it  for good.

 

You can watch their video to get a better idea how it works.

 

 

Thanks for Your Support,

Together We Will Win: What Happens When We Don’t Talk About Testicular Cancer. A Young Man’s Story.

“This awe-inspiring and gut-wrenching story of Ian’s battle with testicular cancer is a must read for anyone with a young man in their life. Readers will gain a personal understanding of cancer and its treatments and find it unimaginable that information on testicular cancer isn’t required education.”

 

I included this quote because it was the endorsement I wrote just after I finished reading the manuscript. Friend and author Karen McWhirt gave me the honor of reading her manuscript before the book was published.

 

Reading the book prior to publication was a huge responsibility and who knows what I would have done had the book not been an incredible creation. I know you can’t exactly tell a friend that you don’t like their book but as a mother who lost her son to testicular cancer I knew that Karen could handle the truth if I didn’t like it.  Fortunately, the book was so incredible that all I could do was spew accolades Karen’s way. She was even kind enough to publish a copy of a personal email I sent her inside the book. Her relationship with her son, Ian Drazick, reminded me at times of mine with my own mother.

 

Ian was diagnosed with advanced testicular cancer at the age of 19 and after a short 4 month battle he died at the age of 20. Karen was his mom and his caregiver the entire time. Before he died, Ian asked his mom to write his story, “…so other guys will know, and they won’t have to go through what I’ve been through…” he said. Karen told Ian she would share his story with others and fighting through the bad days and painful memories she kept her promise.

 

Written in Ian’s voice, Together We Will Win, captures the true experience of what it is like to battle advanced testicular cancer, face intensive chemotherapy and endure exhaustive radiation treatments. Based on the journals Karen kept, you will experience from the early stages of diagnosis trough the last days of life what testicular cancer can do to a young man’s life.

 

Ian dreamed of a time that testicular cancer was talked about as much as other cancers so that other young men wouldn’t be diagnosed at late stages like him. Dreams are very powerful things and while Ian can no longer do it on his own his dreams can still come true. Read Together We Will Win and encourage the young men in your life to do the same. What happens when we don’t talk about testicular cancer shouldn’t happen to any more young men.

 

In the interest of testicular cancer awareness Karen has generously created a book donation program to offer a copy of Together We Will Win to libraries around the world. The program also offers the ability for you to donate a copy in your name or in the honor of a loved one to your local library.

 

On a more personal side, I met Karen in February 2008. I had been trading emails with a mother in the UK that had lost her son to testicular cancer. This mother was doing a lot of education in schools about testicular cancer and I wanted to learn from her because for some reason it is very difficult to get into high schools to talk about testicular cancer in the U.S. She told me that there was a lady in Kansas that was trying to do the same thing and that perhaps I should contact her. I fired off an introduction email to Karen and the rest was history. Karen has been a personal mentor to me countless times and her strength as a mother is simply amazing. Ian’s story and Karen’s strength have greatly impacted my life. I can’t explain how a young man I never met and a mother I have yet to meet face-to-face can influence my life so much. All I can say is that it has happened.

 

This summer, to celebrate my 5 year Cancerversary, I traveled to Wales to do a memorial trek up Mt. Snowdon to honor those young men that have died too early from testicular cancer. On that trip I felt it was my duty to honor Ian and Karen by taking a banner with Ian’s name on it to the top of Mt. Snowdon. I also wanted to do it to show Ian that his dream is still alive and that other guys will know and other guys won’t have to go through what you did Ian.

Together We Will Win

 Thanks for Reading,

 

When you eBay you can now share away

with the Testicular Cancer Society.

The Testicular Cancer Society is now registered with the eBay Giving Works program and 10%-100% of each of the designated sales will be donated to helping support the mission of the Testicular Cancer Society.

 

Buyers can visit the Testicular Cancer Society eBay Giving Works page and click on the “Buy” tab to search for items that go to help support our cause. The page lists items that other sellers have dedicated a portion of the sale as a donation to the Testicular Cancer Society.

 

Sellers can now designate 10%-100% of the sale of their listed item to be donated to the Testicular Cancer Society. As part of the donation eBay will discount your listing fees. Your item will also feature the eBay Giving Works ribbon which has been shown to increase the amount people pay for items. This is a great way to sell some items, make some money and support our cause. Sellers can refer to more detailed information about listing items on eBay Giving Works.

It All Adds Up!

Go to the

Testicular Cancer Society eBay Giving Works page

 and Support Our Cause.

 

Are you a Traveling Warrior? A Man of the Miles? A Lady of the Landings?

Do you have so many airlines miles that you could never end up using them all?

In short, you can help the Testicular Cancer Society get to where we need to be by donating your miles and enjoying a tax-deduction at the same time. Simply contact us and we will add you to our list. The next time we need to book a flight to a conference or speaking engagement we will simply send you an email to see if your offer still stands.

 

Here is how our TestiFLY Program works. We will use Delta Airlines as an example.

 

Airlines allow you to donate your unused miles to charity. Unfortunately, the airlines choose which charities are eligible to receive your donations. We think this is unfair.

 

Airlines also allow you to transfer your miles to another frequent flyer member but they charge you. Delta Airlines charges $0.01 per mile and a transaction fee. Thus, to transfer 30,000 miles to a member of the Testicular Cancer Society so that they can book a flight it will cost $300 to transfer the miles plus a $30 transaction fee. We think this is too expensive.

 

Now here is how the TestiFLY Program works. You simply contact the Testicular Cancer Society and let us know that you are interested in our TestiFLY Program and with which airline you have miles. When a member of the Testicular Cancer Society needs to book a flight to a conference, speaking engagement or awareness event, we will email you to see if your offer to help still stands. If it does, we simply give you our member’s information and flight details and ask that you book the flight via the airlines using your frequent flyer miles. It is that simple. We think this works.

 

Airlines allow you to use your frequent flyer miles to book flights even if you are not the person traveling. Thus, your miles can be used to book a flight for one of our members and ultimately benefit the Testicular Cancer Society. Now, you may want to consult a tax expert but since the miles do have a monetary value, easily estimated at $0.01/mile, by booking a flight you have made a donation in kind to the Testicular Cancer Society and that value should be tax deductible since we are a 501(c)3 organization.

 

Help us to keep educating men about testicular cancer by Joining our TestiFLY Program.

 

 

TWO DUDE’s Bar-B-Que is NUTS about BBQ!

Commemorative HOGS BALL T-Shirts

are now available for

Two Dude’s Bar-B-Que 2nd Annual HOGS BALL.

In The Big Lebowski The Dude abides but with Two Dude’s they arise to help raise awareness about testicular cancer. For every T-shirt sold the dudes are donating $2 to the Testicular Cancer Society. The shirts can be shipped to anywhere in the U.S. for $14.

To Order: Send Checks to:

Two Dudes BBQ

612 N 47

Warrenton, MO 63383

Be sure to include your return mailing address and sizes.

Now you can put a pig in a tuxedo but this ain’t that kind of Hog Ball. On September 21, 2011 the 2nd Annual “Hog Ball”!! will take place at Two Dude’s Bar-B-Que in Warrenton, MO.

There will be $1 Bud Lights all Day.

All You Can Eat starts at 4pm, includes:

Fried Fish!
Fried HOG NUTS!
Fried Frog Legs!
Hot Wings
BBQ Ribs

ALL YOU CAN EAT for only $10 so stop on down and have a BALL. Commemorative HOGS BALL shirts will be available at the event for $12.

If you want to thank Kevin and Brad, “The Dude’s” I suggest that you be sure to check out their Sales Shack and order yourself a bottle or two of their BBQ Sauce. Thanks again guys for supporting the Testicular Cancer Society.

As one of the 195,000 testicular cancer survivors in the U.S. I can tell you that testicular safety is of the utmost importance. When there is only one boy left you want to make sure he is protected.

That is why I am happy to announce that I am actively pursuing to have the Nutty Buddy go from the “Unofficial Official” to the “Official” Athletic Cup of the Testicular Cancer Society.

Trust me folks, this thing has revolutionized the athletic cup industry. If you need the ultimate protection for yourself or the little fellas in your family be sure to get them the Nutty Buddy. You can click on the links above or below to check out their website.

If you don’t believe that this is the best product out there then check out the video below.

In 2006, when I was first diagnosed with testicular cancer, I learned of Skate4Cancer (S4C). It was back when everyone was on Myspace and I was searching around looking for other people that mentioned being a testicular cancer survivor. I would try to strike up a friendship so that I could learn more about the disease and what to expect.

While searching around I ran into Skate4Cancer (dreamlovecure.org) and I was immediately attracted but it wasn’t just with their Myspace page. I began seeing S4C in other people’s Myspace names and immediately felt like I knew them. S4C was a young, positive voice in the fight against cancer. It was a gathering of people with similar experiences and desires and it was just what I had been looking for. S4C was one of the organizations that I learned from and wanted to emulate when forming the Testicular Cancer Society.

So why am I sharing all of this with you now?

I am excited to share that the Testicular Cancer Society has teamed up with Skate4Cancer as part of their “The Cure Is Knowledge” Check Your Balls Campaign. It excites me that almost 5 years from the day I first found S4C and found hope in their messages that I am now in The Cure Is Knowledge fight with them. The Check Your Balls Campaign is aimed to help educate young men on the importance of self-testicular exams as a way to help fight against testicular cancer. I was able to share my story on their campaign page as well.

With testicular cancer “The Cure Is Knowledge.” Testicular cancer has highly effective treatments yet there are still young men dying from the disease. The reason for this is the lack of knowledge. Too many young men don’t know that they are at risk for testicular cancer, they don’t know how to do or aren’t aware of the importance of self-testicular exams and if they do notice something wrong they don’t seek medical attention soon enough. These delays in diagnosis lead to more complicated treatments and even death.

More on Skate4Cancer

Skate4cancer is an organization founded on the importance of engaging youth in cancer prevention. The skateboard world raised them, so working at a street level is what they know and their grassroots approach reflects it. By spreading this excitement and contagious way of thinking through epic skate marathons around the world, S4C has nurtured a strong, supportive community which they are dedicated to expanding.

Armed with the understanding that 80% of cancers can be prevented with early detection and healthy lifestyles, their “The Cure is Knowledge” campaigns propose that the only cure currently available is knowledge. They aim to create a public awareness of these forms of cancer, emphasizing the importance of understanding our bodies and family histories.

By creating educational campaigns that are easy to understand, they hope to inspire youth to incorporate preventative methods into their busy lives. Their goal is to bring together a community in support of these movements that passes the knowledge on to others. By instilling positive habits in young people they can create a generation of people that are well informed on preventative healthy living and familiarity with their bodies.

Skate4Cancer was somewhat of a crazy dream of Rob Dyer’s and this year they celebrated their 8th anniversary. Check out their short-documentary about the last 8 years.